Archive for rheumatology
‘On fire’ with sJIA: When arthritis is much more than joint pain
Georgia is finally living her best life. Her toddler years were challenging: At 15 months old, a series of high fevers landed her at Boston Children’s Hospital for two weeks. After many rounds of tests looking for infection and a bone marrow biopsy to rule out cancer, she was diagnosed with systemic juvenile idiopathic arthritis ... Read More
A global view of rheumatic disease during COVID-19
COVID-19 is bringing new challenges to many people with underlying rheumatic disease who already are immunocompromised by the very nature of their illnesses or the medications used to treat them. To help manage those uncertainties in the current climate, Boston Children’s Hospital is participating in two surveys: one collecting information from rheumatologists, the other directly ... Read More
COVID-19 and a serious inflammatory syndrome in children: Unpacking recent warnings
On April 27, an alert circulated from the U.K. about multi-system inflammatory disease in children with COVID-19, based on a small rise in the number of critically ill children with this illness in England. Picked up by multiple media outlets, the alert cited features of toxic shock syndrome and incomplete Kawasaki disease, with some children ... Read More
Mermaid Caitlyn and her mer-doctor face interstitial lung disease
Our daughter Caitlyn’s first year-and-a-half of life was a puzzle. She was getting sicker and sicker and no one near our home in New York could figure her out. After a period of unexplained rashes and weight loss, our pediatrician’s office said to us, “Something’s wrong and we don’t know what it is. Put her ... Read More