Archive for international
Saving baby Marcela: A mother’s mission to finally hold her daughter
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Where the world comes for answers: Meet some of our international patients
Families travel to Boston Children’s Hospital from around the corner and around the globe. This year, we highlighted three of these fantastic kids. Priyanshu’s father searched the world for the care his son needed for his complex heart condition. Photos: Priyanshu (India) A few months after he was born, Priyanshu was diagnosed with double outlet right ... Read More about Where the world comes for answers: Meet some of our international patients
To #SavePriyanshu: A father’s reach across the world to save his son
Any parent can relate: to the ends of the earth is just the beginning of how far you will go to help your child. Perhaps no one knows this better than Sagar, a father from India whose efforts to save his son stretched across the world and eventually led him to Boston Children’s Hospital. Sagar ... Read More about To #SavePriyanshu: A father’s reach across the world to save his son
Saving Laila: Family travels from Egypt for answers about rare genetic condition
When Aya Hendawy got off the plane that had brought her from Egypt to Boston, she didn’t linger in the airport or consider which tourist attractions to visit. Instead, she took a car directly to the Emergency Department at Boston Children’s Hospital, her daughter Laila in tow. “I asked them to please try to save ... Read More about Saving Laila: Family travels from Egypt for answers about rare genetic condition
Pinpointing Karlijn’s seizures: Neurosurgery helps teen get back to her life
Karlijn Kuiper was visiting her home country of the Netherlands a few years ago when the trouble began. At first, her family noticed she would zone out. “She had these strange spells where she would just stare,” remembers her mother, Marieke. At first, it didn’t occur to Karlijn’s family that they could be seizures. Like ... Read More about Pinpointing Karlijn’s seizures: Neurosurgery helps teen get back to her life
Tagged: brain tumor, epilepsy, international, neurosurgery, seizures
A rebirth in Boston: Gene therapy turns 10
Lea la versión en español. Dec. 17 marks a decade since Agustín Cáceres was “renacido” — reborn. That’s how his parents, Alberto and Marcela, describe the day their son received his new gene. Born in 2010 with X-linked severe combined immunodeficiency (SCID-X1), Agustín spent the first few months of his life in isolation, at home ... Read More about A rebirth in Boston: Gene therapy turns 10
Tagged: gene therapy, international, research, scid
Accessing hemophilia care: A tale of two countries
When Miguel and Marco Antonio were born in the Philippines, they had a 50 percent chance of having hemophilia, as two of their uncles had the condition. “We were just crossing our fingers that they’d fall in the other 50 percent,” says Jojo, their father. But when Miguel was taking his first steps as ... Read More about Accessing hemophilia care: A tale of two countries
Tagged: hemophilia, international, research
A mother’s quest to find a cure for Shwachman-Diamond syndrome
Poppy Inez Hawkins is a born entertainer. Her favorite song is “Fire” by Kasabian. She loves kitchen disco. And she can frequently be found staging performances in the Hawkins-family living room at their home in London, England — free tickets provided and clapping encouraged. “She talks to everyone and will tell anyone who wants to ... Read More about A mother’s quest to find a cure for Shwachman-Diamond syndrome
Henry’s bladder exstrophy journey
Just a few months into his young life, Henry Packer has traveled from the Netherlands to Utah to Massachusetts — and has gone from being a medical mystery to making a best friend with the same rare condition. It’s all part of his ongoing journey with bladder exstrophy, a congenital anomaly in which a baby’s ... Read More about Henry’s bladder exstrophy journey
Tagged: international, urology
Stem cell transplant leads Ali to remission, and a new home
The journey that led Ali Mercy to Dana-Farber/Boston Children’s began in 2010, when Ali was diagnosed with acute lymphocytic leukemia (ALL). At that time, he was treated in the United Arab Emirates (UAE), where his family lived. Chemotherapy initially put Ali’s ALL into remission, but three years later, it returned — this time having metastasized to ... Read More about Stem cell transplant leads Ali to remission, and a new home