Archive for heart
BACH Program: Heart care for patients of all ages
At 73, Fran Sansalone might not seem like a typical Boston Children’s Hospital patient. But she’s one of a growing number of adults who visit the Heart Center regularly. Fran has been a patient in the Boston Adult Congenital Heart (BACH) Program for the past 18 years. Like other adults born with a congenital heart ... Read More about BACH Program: Heart care for patients of all ages
Camp Journey and a horse named Evan build Luca’s confidence
Until this summer, 8-year-old Luca Castellano had never been on a horse. But after participating in Camp Journey, a therapeutic riding camp for kids with congenital heart conditions, he was riding and caring for a horse like a pro. “Luca pretty much fell in love with a horse named Evan,” says his mom, Rebecca. Camp ... Read More about Camp Journey and a horse named Evan build Luca’s confidence
After beating the odds, Joey dreams of Hollywood
Joey Manzo’s biggest dream is to travel to Hollywood to meet Ellen DeGeneres. Given how many dreams he’s already made a reality, it’s likely one day he’ll make that happen too. DiGeorge syndromeDiGeorge syndrome, also called 22q11.2 deletion syndrome, is a genetic condition caused by missing a part of chromosome 22. It can cause a ... Read More about After beating the odds, Joey dreams of Hollywood
A sign of Faith in one little girl’s single ventricle journey
Nicole and Charlie Parker were no strangers to adoption when they embarked on the journey to bring their daughter Faith home from Langfang, China — they had previously adopted two of their four children. What they were not familiar with was raising a child with a complex congenital heart condition. Faith was born with a ... Read More about A sign of Faith in one little girl’s single ventricle journey
Improving developmental care for infants in the Cardiac Intensive Care Unit
Infants born with congenital heart disease (CHD) are some of the most fragile patients, often requiring surgery or other interventions in the first few months after birth. They also face a higher risk of developmental delays, learning disabilities, and behavioral problems than children born with a healthy heart. To help mitigate these developmental challenges, a ... Read More about Improving developmental care for infants in the Cardiac Intensive Care Unit
Innovations in transcatheter valve replacement
The Cardiac Catheterization Program at Boston Children’s Hospital has been at the cutting edge of pediatric care for more than 60 years, developing and refining innovative catheterization techniques and procedures. “The program was built on a culture of collaboration, training, and innovation,” says Diego Porras, MD, FAAP, program chief. “We continue to foster new ideas ... Read More about Innovations in transcatheter valve replacement
A biventricular repair helps California girl thrive
Even before their daughter, Elyse, was born, Amanda and Ian Primavera knew their road would be a little rocky. But they had no idea how hard they’d have to push to get the care they wanted for their daughter. Ultimately, an online support group and a little perseverance helped them find the answers and treatment ... Read More about A biventricular repair helps California girl thrive
Regina’s journey with HLHS: Four years later
Regina was just 25 days old the first time she made the trip from her home in Mexico to Boston. Regina was born with a serious congenital heart defect called hypoplastic left heart syndrome (HLHS), resulting in the underdevelopment of the left side of her heart. Her doctors in Mexico told her parents it was ... Read More about Regina’s journey with HLHS: Four years later
My continuing heart journey with Boston Children’s
My connection to Boston Children’s Hospital started on a bright and sunny June day in 1979. My parents, who were excitedly anticipating what they assumed would be the uncomplicated birth of their first child, got an unexpected surprise when I was born completely blue (like a Smurf) and had to be rushed to Boston Children’s. ... Read More about My continuing heart journey with Boston Children’s
Expanding on a lifetime of heart care: The BACH Program
As more patients born with congenital heart disease (CHD) live well into adulthood and older age, there is an increasing demand for clinicians who understand their complex and unique needs. Since its inception more than 25 years ago, the Boston Adult Congenital Heart (BACH) Program has been a leader in adult congenital heart disease (ACHD) ... Read More about Expanding on a lifetime of heart care: The BACH Program