If you’re lucky enough to get time on Alexia’s packed schedule, you’re in the company of a motivated and ambitious young woman who — in the face of a scary diagnosis — shows others they can do anything they put their mind to. From subtle symptoms to diagnosis Alexia’s fight against moyamoya disease, a rare ... Read More about A model patient: Alexia’s triumph over moyamoya disease
One of the first things you’ll notice about Amanda Altemus is her big smile. She’s a proud Clemson Tiger and excited to talk about how she is in the university’s post-secondary education program for students with intellectual disabilities. When she’s not studying, she loves rooting for the Clemson football team, watching YouTube videos, and listening ... Read More about Amanda gets the smile she always wanted — just in time for college
This is the second of a two-part series offering dental advice to the parents of children with special health care needs. A visit to the dentist can be an overwhelming experience for children with special health care needs. Like many people, they might feel uncomfortable with dental picks and drills. Or, favoring the rhythm of ... Read More about Kids with special health care needs can take small steps toward dental visits
This is the first of a two-part series offering dental tips to the parents of children with special health care needs. The texture of a toothbrush’s bristles can be enough to make dental hygiene an uncomfortable undertaking for children with special health care needs. And because children with autism spectrum disorders, cerebral palsy, Down syndrome, and other conditions are ... Read More about Parents: Start dental care early for children with special health care needs
“It’s like learning a new language. It’s a challenge, but a good challenge,” says Kristala of the new ways she has learned to connect with her 3-year-old son, Ellison, who has Down syndrome. Her favorite part of the Joint-Attention-Symbolic-Play-Engagement-Regulation (JASPER) clinical trial program at Boston Children’s Hospital came during the “Follow His Lead” week. “I ... Read More about Can intensive early behavioral therapy help children with Down syndrome?
If this were a normal year, summer would be wrapping up and kids would be returning to the routines of another school year. But school will be different this fall. From staggered start times to classrooms set up for physical distance, kids are in for an unpredictable year. The many changes may be especially difficult ... Read More about Back to school during COVID-19: Children with special needs
Among the many stresses of having an ill or injured child, parents often feel a strain on their marriage. Whenever she can, clinical social worker Katherine Preston, LICSW, reassures families that a child’s illness does not automatically spell the end of the parents’ relationship. Based on studies of families facing childhood cancer and diabetes, Preston ... Read More about Relationship talks: Staying together through a child’s illness
When they travelled to the orphanage in China in early 2018, Shannon and Matt Gottschalk knew the toddler they hoped to adopt had Down syndrome. They knew she had been abandoned by the side of a highway and delivered to an orphanage by the farmer who’d found her. The couple was surprised, however, that at ... Read More about Everli: Living her best life after atlantoaxial instability