Patient Stories
I tried the keto diet to help my epilepsy and it changed my life
My name is Dennis. I’m 15 years old and live in East Greenwich, Rhode Island. Two years ago, I started the keto diet to help my epilepsy and it changed my life. Here’s my story… I was 7 when I was diagnosed with epilepsy. I was too young to know what that really meant or ... Read More about I tried the keto diet to help my epilepsy and it changed my life
Clinical Care
Generations of excellence in lower extremity care: Dr. Kasser and Dr. May
As an orthopedic surgeon and professor of surgery, Dr. James Kasser has spent several decades sharing his expertise in limb reconstruction with students of Harvard Medical School. Dr. Collin May was one of his students and later joined the surgical team in the Lower Extremity Program at Boston Children’s Hospital. He has spent the past ... Read More about Generations of excellence in lower extremity care: Dr. Kasser and Dr. May
Patient Stories
A taste of childhood: One family’s journey to an IV-free diet
Children with short bowel syndrome often miss out on childhood’s simple and delicious pleasures, like birthday cake, pizza, and ice cream. But Dr. Lissette Jimenez and the team at the Center for Advanced Intestinal Rehabilitation (CAIR) at Boston Children’s Hospital are working to change that. Short bowel syndrome is caused by the loss or lack of function of the small intestine, ... Read More about A taste of childhood: One family’s journey to an IV-free diet
Research
Risdiplam improves motor function in infants with spinal muscular atrophy
Until recently, babies and children with spinal muscular atrophy (SMA) lacked any type of treatment capable of stopping the neuromuscular disease from progressing. In SMA, damaged motor neurons in the spinal cord fail to correctly send messages to the muscle cells. As a result, infants and children with SMA may not be able to hold ... Read More about Risdiplam improves motor function in infants with spinal muscular atrophy
Patient Stories
A lot better than surgery: Jesse’s treatment for pectus excavatum
Like many growing boys, Jesse Zuniga went through a growth spurt when he was 12. Around that time, his pediatrician noticed an indentation in his chest. Neither he nor his mother, Sarah, had heard of pectus excavatum or vacuum bell therapy before. Soon they would be experts in both. Also known as concave chest or ... Read More about A lot better than surgery: Jesse’s treatment for pectus excavatum
Clinical Care
Gait analysis gives runners a window into their form
Why can some runners compete in marathon after marathon while others get injured? The answer often lies in the runner’s form. According to Dr. Kristin Whitney, co-director of the Injured Runners Clinic at Boston Children’s Hospital, many runners aren’t aware of subtleties like how hard their feet hit the ground or the angle of their ... Read More about Gait analysis gives runners a window into their form
Research
Thickened feeds — but not acid-suppressing medications — help treat laryngomalacia in infants
In laryngomalacia, the soft tissues of the larynx fall over the airway opening and partially block it, which can result in stridor, feeding difficulties, and other symptoms. Infants with this condition are frequently treated with acid-suppressing medications, based on the belief that gastroesophageal reflux might worsen the problem. However, there’s little evidence to support the ... Read More about Thickened feeds — but not acid-suppressing medications — help treat laryngomalacia in infants
Patient Stories
“I am a superhero”: Joecel and his mom work to address feeding challenges
Joecel Castillo loves Spiderman, Batman, He-Man — and pancakes. They’re the sorts of favorites that might show up on any 5-year-old’s list, but Joecel isn’t just any 5-year-old. In fact, until recently, pancakes wouldn’t have been among his favorite things. Very few foods would have been. “He wouldn’t even eat his own birthday cake,” says ... Read More about “I am a superhero”: Joecel and his mom work to address feeding challenges
Research
Why do some people get severe COVID-19? The nose may know
The body’s first encounter with SARS-CoV-2, the virus behind COVID-19, happens in the nose and throat, or nasopharynx. A new study in the journal Cell suggests that the first responses in this battleground help determine who will develop severe disease and who will get through with mild or no illness. Building on work published last ... Read More about Why do some people get severe COVID-19? The nose may know
Patient Stories
Austin’s story: Raising awareness after treatment for pediatric stroke
In May, 11-year-old Austin Rizzo led the pack in a two-mile road race of his own creation. But the race, named the Banana Split 2-Miler after his favorite fruit, was more than just a fun way to pass time — it was aimed at raising money to support research into pediatric stroke. It’s a topic ... Read More about Austin’s story: Raising awareness after treatment for pediatric stroke