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Olivia, who was inspired to become a nurse, smiles at the camera.

How I was inspired to become a nurse

Patient Stories
On October 17, 2011, I woke up with a headache so severe I could not go to school. Even at age 13, I knew this type of pain was not normal, even though I had been having headaches for more than a year. Before I knew it, I was being rushed by ambulance to Boston ... Read More about How I was inspired to become a nurse
Tagged: brain tumor, nursing
Nicholas, who has Prader-Willi syndrome, and his parents present an award to his nurse

A twinkle in his eye: Nurse Michael Felber

Patient Stories
After 17-year-old Nicholas Peters had spinal fusion surgery, his nurse, Michael Felber, became an essential person in his recovery. Nicholas has a range of neurological, endocrinological, behavioral, and orthopedic issues as a result of Prader-Willi syndrome, a rare genetic condition. His condition, months of pain leading up to the surgery, and the hectic hospital environment made Nicholas prone ... Read More about A twinkle in his eye: Nurse Michael Felber
Tagged: nursing, orthopedics
little boy with tracheobronchomalacia and his nurse

A note for my nurse

Patient Stories
In honor of Nurses’ Week, we asked a few of our patients and their families to share what their favorite nurse means to them. Jack — Leah Frain, FNP “Leah is a kind and beautiful lady. She helps kids stop getting sick. I like giving her hugs. And kisses, too! My favorite memory of Leah ... Read More about A note for my nurse
Tagged: fetal medicine, midaortic syndrome, nursing, tracheomalacia
rebecca at a ball game prior to her stroke

Life after stroke: Rebecca’s fierce determination

Patient Stories
Last July, Rebecca Gold’s parents, Karen and Adam, had just dropped her off at sleepaway camp in Pennsylvania. They hadn’t even completed the drive back to Connecticut when they received a frightening call: Their 12-year-old daughter had collapsed to the floor, vomiting and unable to move her limbs. She was now at a nearby children’s ... Read More about Life after stroke: Rebecca’s fierce determination
Tagged: stroke
boy with tracheobronchomalacia plays at the hospital

More than a cough: Advocating for Jack

Patient Stories
By the time he was 2 years old, Jack Baker had made some 20 trips to the emergency department and had been hospitalized about 10 times. For much of his young life, the little boy had struggled with a cough that his parents, Katie and Rick, could only describe as a barking, seal-like noise. He ... Read More about More than a cough: Advocating for Jack
Tagged: Esophageal and Airway Treatment Center, tracheomalacia
Nick, who participated in a clinical trial for autism, walks in the woods

Nick: Overcoming his fears to make a difference for others

Patient Stories
People decide to participate in a clinical trial for lots of reasons. For 14-year-old Nick Brown, it came down to wanting to make a difference in the world. Diagnosed with autism at age 5, Nick has had a lifelong aversion to hospitals, and especially to needles. Yet, when his parents told him about a new ... Read More about Nick: Overcoming his fears to make a difference for others
Tagged: autism spectrum disorder, clinical trials
hannah, a baby with short bowel syndrome, looks at the camera

Worth the fight: Finding care for short bowel syndrome

Patient Stories
When Hannah Lillie meets someone new, she’s likely to smile and blow them a big kiss. The friendly, wide-eyed toddler loves being the center of attention — but when she was just 3 weeks old, she and her parents, Layne and Ryan, found themselves in the middle of a medical whirlwind they could never have ... Read More about Worth the fight: Finding care for short bowel syndrome
Tagged: home parenteral nutrition, short bowel syndrome, volvulus
Gracie poses with a stuffed bear, both wearing surgical halos used during traction to repair severe spinal deformities.

Gracie’s complex spine

Patient Stories
Halloween 2018 was no ordinary ghouls’ day for Gracie Neef. She and both her parents dressed up as the witches from “Hocus Pocus.” To Gracie’s delight, her father’s costume included a long, blonde wig. Even more unusual, Gracie was an inpatient at Boston Children’s Hospital. “The fact that Gracie was going to spend Halloween in ... Read More about Gracie’s complex spine
Tagged: complex cervical spine, halo traction, neurosurgery, orthopedics, spinal fusion surgery
Mikayla, who was treated for hip avulsion fracture, balances upside down on the uneven bars.

A gymnast gets her spring back

Patient Stories
In order to master the pirouette, Mikayla Comeiro drew on many of the strengths she’d developed as a competitive gymnast: hours of practice, determination and physical stamina. To perform a pirouette, the gymnast swings herself into a handstand on the uneven bars and walks her hands around in a circle, rotating her entire body while ... Read More about A gymnast gets her spring back
Tagged: orthopedics, performing artist athletes, sports medicine
peyton celebrates care for anorectal malformation

‘Finally in the right place’: Peyton’s journey to Boston

Patient Stories
When Peyton Miklas comes to Boston Children’s Hospital for an appointment, she isn’t just seeing Dr. Belinda Dickie, co-director of the Colorectal and Pelvic Malformation Center, or one of the other clinicians who care for her. The 18-month-old is also excited to visit with her buddy Bryson. The toddlers — who were born within a day of ... Read More about ‘Finally in the right place’: Peyton’s journey to Boston
Tagged: anorectal malformation

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