After recovery from kidney cancer, Lia pays it forward
As a 3-year-old, Lia Scagnoli skipped across the “Bridge of Hope” connecting Boston Children’s Hospital and Dana-Farber Cancer Institute each time she had a chemotherapy infusion or other treatment for pediatric kidney cancer at Dana-Farber’s Jimmy Fund Clinic. Caregivers offering equal parts love, hope, and fun diversions gave her and her family a feeling of confidence ... Read More about After recovery from kidney cancer, Lia pays it forward
Making up for lost time: Living with esophageal atresia
Whether he’s riding his dirt bike, learning how to swim, playing with his dogs and cats, or herding the chickens and goats on his family’s farm, Landen Spry loves staying active and being outside. “He’s making up for lost time,” says his mother, Jolene. She isn’t exaggerating. During his young life, he’s spent nearly a ... Read More about Making up for lost time: Living with esophageal atresia
Endocrine-oncology treatment helps teen with rare genetic condition
Felicia Walbridge has long been interested in biomedical engineering and plans on majoring in the field during college. Until recently, the teenager’s experience in this area was limited primarily to reruns of the TV show “Grey’s Anatomy.” Then, with little warning, Walbridge became the star of her very own medical drama — complete with a ... Read More about Endocrine-oncology treatment helps teen with rare genetic condition
A biventricular repair helps California girl thrive
Even before their daughter, Elyse, was born, Amanda and Ian Primavera knew their road would be a little rocky. But they had no idea how hard they’d have to push to get the care they wanted for their daughter. Ultimately, an online support group and a little perseverance helped them find the answers and treatment ... Read More about A biventricular repair helps California girl thrive
Leg lengthening and hip surgeries inspire a career
Lauren Schoeller was in eighth grade when she decided to become an orthopedic surgeon. She had by then had multiple surgeries, many of them scheduled around spring softball season. Now 20 and studying premed at the University of New Hampshire, Lauren has had a total of 18 operations on her leg, hips, foot, and spine. ... Read More about Leg lengthening and hip surgeries inspire a career
Grace: Developing her inner ninja after brain surgery
The McGuigans were enjoying a family dinner at a favorite restaurant last October when their lives took an unexpected turn. In the middle of their meal, 4-year-old Grace suddenly developed a strange look on her face and started rhythmically moving her wrist. When she didn’t respond to her name, her parents, Christina and Nathan, knew ... Read More about Grace: Developing her inner ninja after brain surgery
Jack: My AVM story
Last spring, during my junior year of high school, I had a head collision during rugby practice. My coach recommended that I go to the emergency room for x-rays because I had a history of concussions. My parents took me to the hospital and the doctor there confirmed I had a concussion, and recommended that ... Read More about Jack: My AVM story
Ready for the next step: Innovative care for Chase
Chase Essex loves pizza and has even prepared shrimp scampi for his family. So it might come as a surprise that, until recently, the 14-year-old hadn’t eaten by mouth for much of his life. “Now,” says his mother, Antoinette, “he eats everything in sight.” More than a decade ago, Chase was like any other curious ... Read More about Ready for the next step: Innovative care for Chase
Breaking gender biases: What is it like to be a girl with severe hemophilia?
In human biology class this past semester, Morgan DiPrima viewed a PowerPoint presentation that made her head spin. It included a hemophilia slide solely focused on men. “So, I asked the professor if I could do a class presentation on hemophilia for extra credit.” Very few college students “request” extra work, but this 19-year-old Dean ... Read More about Breaking gender biases: What is it like to be a girl with severe hemophilia?
Ryker’s comeback from osteochondritis dissecans
When Ryker Casey takes the field, everything comes down to the strength of his legs and precision of his kick. As a football kicker, he sends the ball deep into the opponent’s end zone at kickoff and earns extra points for his team by sending the ball through the field goal, sometimes from 50 yards ... Read More about Ryker’s comeback from osteochondritis dissecans