Not just another patient: Care for midaortic syndrome that’s ‘handcrafted’ for Iris
This past July, Iris Huot, her older sister, Audrey, and their parents, Jessica and Austin, gathered around their dining room table. To an outsider, it might seem like an ordinary dinner, but for the Huots, it was a moment of perspective — and gratitude. “It was the first time in eight weeks that we had ... Read More about Not just another patient: Care for midaortic syndrome that’s ‘handcrafted’ for Iris
From medical first to marathon finisher: Corey’s ACL story
Corey Peak’s role as a “medical first” began on a ski slope in 2015 when he tore his anterior collateral ligament (ACL). He remembers falling and hearing two pops. “One side was my binding releasing. The other side, I later realized, was my ACL tearing.” Thirty days after his accident, Corey would become the first ... Read More about From medical first to marathon finisher: Corey’s ACL story
Thinking – and operating – outside the box: Bypassing Saoirse’s aneurysm
Saoirse just turned 3. There was a big to-do for her birthday, complete with family flying to Massachusetts from Ireland for the occasion. The celebration was big because Saoirse has a lot to celebrate. About six months ago, doctors discovered an unstable aneurysm in her brain, and within days she underwent surgery to treat the ... Read More about Thinking – and operating – outside the box: Bypassing Saoirse’s aneurysm
How transnasal endoscopy got Jamie back on the golf course
Jamie is like most 15-year-olds — he goes to school, hangs out with his friends, and still makes time to get outside to play some golf and baseball. However, when Jamie was having bouts of throwing up and getting food stuck in his throat, he and his mom, Tricia, knew it wasn’t just a case ... Read More about How transnasal endoscopy got Jamie back on the golf course
Overcoming microtia, atresia, and speech challenges: Braelyn’s story
Eight-year-old Braelyn is a sweet, confident kid who loves everyone, dotes on her little sister Kamryn, does well in school, and never stops moving. Her parents, Danielle and Joseph, are incredibly grateful to see their daughter happy and thriving, especially after the long road it took to get here, including pharyngeal flap surgery and ear ... Read More about Overcoming microtia, atresia, and speech challenges: Braelyn’s story
Virtual visits give Weston time to grow and thrive
For many kids and parents, staying home during the COVID-19 pandemic was a challenge. But for Weston Mahady and his family, social distancing was just what the doctor ordered. The slowed-down pace, time spent together — and access to virtual appointments with Boston Children’s specialists — allowed Weston to make developmental strides that once hadn’t ... Read More about Virtual visits give Weston time to grow and thrive
A family’s search for answers and hope for PACS1 syndrome
Alya, 9, was about three weeks old when her mother, Taruna, noticed movements and behaviors she was concerned might be seizures. What followed were multiple hospitals, multiple tests, and eventually a diagnosis of PACS1 syndrome. This rare genetic neurodevelopmental disorder can lead to intellectual disabilities and delays and currently has no cure. “We were told to ... Read More about A family’s search for answers and hope for PACS1 syndrome
One day on the field, admitted to the ICU the next: Rob’s liver transplant journey
When you’re a teen, it’s not very common to worry about what’s going on inside your body — especially not about potential organ failure. For Rob, now 14 years old, that happened in the blink of an eye. One day, he was scoring goals in soccer and hanging out with his friends. But in just ... Read More about One day on the field, admitted to the ICU the next: Rob’s liver transplant journey
Lifechanging surgery brings Ann-Raleigh relief from VUR — and some new ‘besties’
When Ann-Raleigh Murthy travels to Boston from her home in Louisiana, she has a list of “must-dos.” Among the highlights: Ride the swan boats in the Public Garden, swing by her favorite chocolate shop, go shopping — and visit with Dr. Carlos Estrada, Boston Children’s urologist-in-chief. Dr. Estrada, along with neurosurgeon Dr. Benjamin Warf, “are two ... Read More about Lifechanging surgery brings Ann-Raleigh relief from VUR — and some new ‘besties’
Varsity blues: How AVM radiation therapy got Greta back to sports
Want to find Greta? Try the hockey rink, or softball field, or volleyball court. Where won’t you find her? Sitting on the sidelines — at least not anymore. After a tough year receiving treatment at Boston Children’s Hospital for a tangled cluster of blood vessels in her brain, known as an arteriovenous malformation (AVM), Greta’s ... Read More about Varsity blues: How AVM radiation therapy got Greta back to sports