Patient Stories
A twinkle in his eye: Nurse Michael Felber
After 17-year-old Nicholas Peters had spinal fusion surgery, his nurse, Michael Felber, became an essential person in his recovery. Nicholas has a range of neurological, endocrinological, behavioral, and orthopedic issues as a result of Prader-Willi syndrome, a rare genetic condition. His condition, months of pain leading up to the surgery, and the hectic hospital environment made Nicholas prone ... Read More about A twinkle in his eye: Nurse Michael Felber
Patient Stories
A note for my nurse
In honor of Nurses’ Week, we asked a few of our patients and their families to share what their favorite nurse means to them. Jack — Leah Frain, FNP “Leah is a kind and beautiful lady. She helps kids stop getting sick. I like giving her hugs. And kisses, too! My favorite memory of Leah ... Read More about A note for my nurse
Our Community
All in the family: Dynamic nursing duos in the Heart Center
Sometimes nursing runs in the family, and at the Boston Children’s Hospital Heart Center, we’re lucky to have several family pairs of nurses who are related. In celebration of National Nurses Week, we asked three of our duos to share more about what it’s like to work together. Lisa and Michael Greenlee Lisa and Michael ... Read More about All in the family: Dynamic nursing duos in the Heart Center
Patient Stories
Life after stroke: Rebecca’s fierce determination
Last July, Rebecca Gold’s parents, Karen and Adam, had just dropped her off at sleepaway camp in Pennsylvania. They hadn’t even completed the drive back to Connecticut when they received a frightening call: Their 12-year-old daughter had collapsed to the floor, vomiting and unable to move her limbs. She was now at a nearby children’s ... Read More about Life after stroke: Rebecca’s fierce determination
Patient Stories
More than a cough: Advocating for Jack
By the time he was 2 years old, Jack Baker had made some 20 trips to the emergency department and had been hospitalized about 10 times. For much of his young life, the little boy had struggled with a cough that his parents, Katie and Rick, could only describe as a barking, seal-like noise. He ... Read More about More than a cough: Advocating for Jack
Health and Parenting
Spring health tips: Lyme, seasonal allergies, poison ivy
Dr. Carolyn Sax is a primary care pediatrician at Hyde Park Pediatrics, a Pediatric Physicians’ Organization at Boston Children’s Hospital (PPOC). As winter recedes, warmer temperatures can introduce a new set of spring health challenges. Susceptible children start to display symptoms of seasonal allergies as soon as trees and flowers bloom and grass grows — ... Read More about Spring health tips: Lyme, seasonal allergies, poison ivy
Our Community
Drumroll please: Our ‘Best in Care’ finalists
This spring, one staff member or volunteer from Boston Children’s Hospital will be honored with a Patient and Family Best in Care Award. Founded by the Boston Children’s Family Partnerships Program, the Best in Care Award is a way for families to recognize staff members and volunteers who have gone above and beyond in providing exceptional ... Read More about Drumroll please: Our ‘Best in Care’ finalists
Health and Parenting
Please don’t judge: Supporting a friend whose child has a mental health condition
Shannon Larson is a member of Boston Children’s Psychiatry Family Advisory Council, a volunteer group of family representatives as well as members of Psychiatry leadership, who work together to improve patient care and families’ experiences in the Department of Psychiatry. When my children were younger, I was always able to help them maneuver the difficulties of growing ... Read More about Please don’t judge: Supporting a friend whose child has a mental health condition
Clinical Care
Two decades of innovation in pulmonary vein stenosis
Over the past 20 years, the Pulmonary Vein Stenosis Program at Boston Children’s Hospital has been crafting an innovative strategy in its approach to pulmonary vein stenosis (PVS) based on a new way of thinking about this rare and unusual disease. “The breakthrough came in realizing that PVS is not like other types of congenital heart disease,” says cardiologist Kathy ... Read More about Two decades of innovation in pulmonary vein stenosis
Clinical Care
Cardiac Fitness Program
The Cardiac Fitness Program at Boston Children’s Hospital was founded on the belief that children with congenital heart defects (CHDs) can and should achieve the same benefits of exercise as their peers. The program — one of only a few in the country — offers a safe, supervised, individually-tailored exercise and education program for children and adults ... Read More about Cardiac Fitness Program