Search Results for: Boston Hemophilia Center
Hemophilia A gene therapy paves the way for a life with less pain
Matthew Harrington, a 35-year-old oil-field worker from Douglas, Wyoming, knows pain. Born with hemophilia A, a rare condition in which …Read More
Accessing hemophilia care: A tale of two countries
When Miguel and Marco Antonio were born in the Philippines, they had a 50 percent chance of having hemophilia, as …Read More
Long-term hemophilia treatment could lie in patients’ own cells
Children (and adults) with hemophilia are slow to form blood clots, so are at constant risk for uncontrolled bleeding. Even …Read More
An education in hemophilia for Colin’s new school
Every morning, one of Colin Bazinsky’s parents puts a needle into his chest to give him an infusion of clotting …Read More
Breaking gender biases: What is it like to be a girl with severe hemophilia?
In human biology class this past semester, Morgan DiPrima viewed a PowerPoint presentation that made her head spin. It included …Read More
Taking life with hemophilia one day at a time
Hemophilia has always been part of Kayla Klein’s life. Her father, David, had the condition. Her son, Robbie, has it …Read More
In a thriving gene therapy program, nursing leadership is the driving force
Gene therapy was made possible by decades of technological advances. But to execute gene therapy at scale? That would not …Read More
After decades of evolution, gene therapy arrives
As early as the 1960s, scientists speculated that DNA sequences could be introduced into patients’ cells to cure genetic disorders. …Read More
How our children’s rare conditions created our special bond
Twenty years ago, Brad McNamara and Joel Klein became roommates at Northeastern University. Little did they know that years later …Read More
Avoiding the needle: Engineering blood vessels to secrete drugs
People who rely on protein-based drugs often have to endure IV hookups or frequent injections, sometimes several times a week. …Read More