Archive for short bowel syndrome
Worth the fight: Finding care for short bowel syndrome
When Hannah Lillie meets someone new, she’s likely to smile and blow them a big kiss. The friendly, wide-eyed toddler loves being the center of attention — but when she was just 3 weeks old, she and her parents, Layne and Ryan, found themselves in the middle of a medical whirlwind they could never have ... Read More about Worth the fight: Finding care for short bowel syndrome
Living his best life: Caring for Christian
Christian Jaspersen was wet, muddy — and having the time of his life. After an ATV ride around his family’s rural Oklahoma farm with their grandfather, he and his two older brothers plopped themselves into a nearby mud puddle, playing with toy trucks and getting wonderfully messy. “For a while, we didn’t know if Christian ... Read More about Living his best life: Caring for Christian
Tagged: g tube, gastroschisis, short bowel syndrome
‘An easy decision’: Finding care for short bowel syndrome
Allie DeRienzo loves to dance, sing and play with her big brother, switching from the pink-and-purple cartoon world of Shimmer and Shine to the action-packed fantasy of Star Wars with the blink of an eye. It’s a flexibility that has served her well: In just a few years, she’s endured more ups and downs than most 3-year-olds. Although her ... Read More about ‘An easy decision’: Finding care for short bowel syndrome
Tagged: short bowel syndrome
Whatever it takes: Fighting for Michael
Michael stood at the top of the hill, staring down at the glittering white snow. The prospect of skiing to the bottom was scary — on previous trips, he’d refused to try, worried that he would fall. But this time was different. He was ready to take a chance. Attempting to balance without using poles, ... Read More about Whatever it takes: Fighting for Michael
Tagged: short bowel syndrome, volvulus