Search Results for: cancer
How families are reshaping Shwachman-Diamond syndrome research
No one knew the heartache about to unfold when Savannah and Brett Lillywhite first began thinking about having a family …Read More
Ellery’s story: The mystery of opsoclonus myoclonus syndrome
Ellery was a normally developing 2-year-old when her skills took a dramatic shift backwards last winter. “She started wobbling when …Read More
How a broken leg and a transatlantic flight led to a deep vein thrombosis
Pain was 16-year-old Katerina Dalmanieras’s first warning sign when she returned from a family vacation in August. The high school …Read More
What you need to know about vaping to keep children safe
Could your child be vaping? A growing number of middle and high school students today are using vaping products, also …Read More
Hope in the shadow of Li-Fraumeni syndrome
Jake was diagnosed with his first cancer — osteosarcoma — in 2007 when he was only 16 years old. Meanwhile, …Read More
Exploring autism by way of three rare genetic disorders
Rajna Filip-Dhima, MS is a senior project manager for the Translational Neuroscience Center at Boston Children’s Hospital and for the …Read More
Provider Spotlight: Meet Dr. Carrie Heincelman
Dr. Carrie Heincelman joined the Orthopedic and Sports Medicine Center as an attending physician in orthopedic oncology in August 2019. …Read More
An education in hemophilia for Colin’s new school
Every morning, one of Colin Bazinsky’s parents puts a needle into his chest to give him an infusion of clotting …Read More
Managing your child’s treatment-related nausea
Treatment-related nausea is an unpleasant side effect that can occur before, during, or after cancer treatments such as chemotherapy and …Read More
Not all heroes wear capes: Taking on dyskeratosis congenita
When Mason Langlais argues with his sister, Jillian, he regularly repeats a mantra. “I’m the rare one,” he says. “So, …Read More