Archive for Lisa D. Ellis
Teen author dedicates a children’s book to her twin brother with Shwachman-Diamond syndrome
Sophia Namazy, 14, has a hero: it’s her twin brother Max, who has Shwachman-Diamond syndrome. This is a rare and very serious genetic condition that impacts multiple systems in the body, including the bone marrow, pancreas, skeleton, and immune system. Although her brother is currently doing well, people with this disease have a high risk ... Read More about Teen author dedicates a children’s book to her twin brother with Shwachman-Diamond syndrome
Tagged: leukemia, rare disease, research
What you need to know about vaping to keep children safe
Could your child be vaping? A growing number of middle and high school students today are using vaping products, also called e-cigarettes, JUULs, or dabs (used for vaping marijuana) among other names. Signs and symptoms of vaping can be difficult for parents to notice, but talking with your kids about vaping and monitoring for concerning signs ... Read More about What you need to know about vaping to keep children safe
Four ways to manage the impact of cystic fibrosis on the GI system
Cystic fibrosis, a genetic disorder that affects the lungs and other organs, used to be considered a childhood disease with a very high mortality rate. But today, thanks to improvements in screenings, diagnosis, and treatments, as well as a deeper understanding of the importance of managing nutritional status, people with cystic fibrosis are living into ... Read More about Four ways to manage the impact of cystic fibrosis on the GI system
Tagged: gastroenterology, nutrition
A series of coincidences unite two people to fight childhood cancer
When Lauren Wolinski accepted a job as a summer intern in the oncology unit at Boston Children’s Hospital, she could not have anticipated how extraordinary the experience would turn out to be. “I expected it would be very intense and sad to work with children who have cancer, but I quickly found out Boston Children’s ... Read More about A series of coincidences unite two people to fight childhood cancer
Exploring targeted treatments for children with low-grade brain tumors
Children diagnosed with low-grade astrocytomas, the most common type of pediatric brain tumor, have close to 90 percent overall survival rates. However, the growth of the tumors, as well as the standard treatments (neurosurgery and chemotherapy) required to control them, can cause serious side effects, including damaging developing brains and bodies. Researchers at Dana-Farber/Boston Children’s Cancer and Blood ... Read More about Exploring targeted treatments for children with low-grade brain tumors
Tagged: cancer, glioblastoma, research
Chemical screening suggests a two-pronged treatment for pediatric Ewing sarcoma
For children with Ewing sarcoma, an aggressive bone cancer, a combination of two different classes of drugs may work synergistically to turn off the drivers fueling this disease, finds a new study. The combination appears to be more powerful than relying on either treatment alone. The study, published online last month in Clinical Cancer Research, is the latest in a ... Read More about Chemical screening suggests a two-pronged treatment for pediatric Ewing sarcoma
Tagged: adolescent medicine, cancer, ewing sarcoma, rare disease
How three extraordinary kids inspire their families, one mile at a time
For many people, running the Boston Marathon is a way to challenge themselves. But for three special Boston Children’s Hospital families, the marathon also provides an opportunity to celebrate the journeys of their extraordinary children who have overcome many obstacles to be able to cheer on their parents to the finish line. Meet Natalie, Brigid, ... Read More about How three extraordinary kids inspire their families, one mile at a time
Tagged: transplant