Archive for Liz Hilton

Interstitial lung disease patient Caitlyn with her care team

Mermaid Caitlyn and her mer-doctor face interstitial lung disease

Our daughter Caitlyn’s first year-and-a-half of life was a puzzle. She was getting sicker and sicker and no one near our home in New York could figure her out. After a period of unexplained rashes and weight loss, our pediatrician’s office said to us, “Something’s wrong and we don’t know what it is. Put her ... Read More

Tagged: interstitial lung disease, pulmonology, rare disease, rheumatology