In October 2014, Violet and her parents traveled from their home in rural Oregon to Boston Children’s Hospital for a life-changing surgery. Violet, who was born with an extremely rare and serious craniofacial anomaly, called a Tessier cleft, needed an operation to close the gap in her facial bones. After nine hours in the surgical suite, Dr. John Meara, plastic surgeon-in-chief, and Dr. Mark Proctor, neurosurgeon-in-chief, were able to reshape Violet’s face and transform her life.
Watch Violet’s whole story in three parts; her first arrival in Boston, using 3D models to plan her surgery, and her journey into the operating room.
Violet will eventually need more surgery, but for now, she’s a busy and rambunctious 6-year-old, who loves to keep up with her twin sister, Cora.
On track in first grade
“It’s been a busy year,” says her mom, Alicia. “She did well in kindergarten and recently started first grade with Cora. They’re both right on track with reading and writing, though Violet is left-handed, so we’ve had a few challenges with that.”
Alicia says Violet and Cora both love being outside, animals, camping, crafting, going to the beach, and riding horses. They also keep the rest of the family laughing. “They crack me up all the time with the things that come out of their mouths.”
Although Violet and Cora are the youngest of six children, they rule the roost at home. “The twins are the bosses,” she laughs. “Our older kids don’t realize how well they’re being worked over.”
A smile that wins hearts
Violet will always look a little different, but she’s just like any other happy 6-year-old. “People sometimes don’t know how to react when they see her,” says Alicia. “But she’s got such a great smile, she just smiles and that’s the ice breaker. There’s a lot of personality in a very little package.”
Because the family lives in a small town, Violet is well known. “Everywhere we go, everyone knows Violet and everyone asks about her,” says Alicia.
But even with Violet’s near-celebrity status, the family sometimes encounters unkind remarks. They try to handle these moments with grace. “The more exposure people have to Violet, the more they see her for who she is and don’t focus on her differences,” says Alicia. “She makes everyone around her a better person. People spend five minutes with her and they can’t help but love her.”
Happy and enjoying life
Eventually, Violet will need to return to Boston for more surgery, but for now she’s happy and enjoying life. “She’s been though more than most adults and has taken it all with a smile,” says Alicia. “Her outlook and personality just shine. She amazes me every day.”
Learn more about the Craniofacial Program.
Related Posts :
Getting COVID-19 vaccines to medically fragile children
As COVID-19 vaccines slowly roll out, should children who need complex care or have serious medical conditions be vaccinated? We ...
The CAMEO tool: Capturing the complex nature of pediatric nursing
By any measure, nursing is a complex profession. On any given day, nurses must draw on a wide range of ...
Guidance for assessing treatment response in pediatric brain tumors
Assessing patients’ response to cancer therapy can be challenging, especially in neuro-oncology. Generally, we assess treatment response by a change ...
Sharing our journey with cavernous malformations
Finley and her twin sister, Rowan, were born seven weeks premature on November 7, 2017 in Scranton, Pennsylvania. In July 2019, Finley was ...