As clinicians at Boston Children’s Hospital continue to pioneer new therapies for both kids and adults, nurses play a critical role in bringing those treatments to families. To make sure groundbreaking treatments like gene therapies are integrated into both nursing practice and patient care, Boston Children’s nurses have developed a series of processes.
When a new drug or treatment becomes available, our nurses lead by pulling all the intersecting pieces together to ensure the process flows and quality and safety remain at the forefront. This includes the design and delivery of:
- tailored clinical education programs
- patient and family education materials
- orders and standards of practice
- pathways and workflows
- new equipment
- physical space
Collaboration in action
The use of a gene therapy called tisagenlecleucel (brand name KYMRIAH) serves as a powerful example of this work. In 2018, Dana Farber/Boston Children’s Cancer and Blood Disorders Center became one of the first sites in the country certified to administer this drug to patients with acute lymphoblastic lymphoma. Nurses were at the table with physicians, scientists, pharmacists, and others to coordinate deployment of the therapy to our patients. Together, research and stem cell transplant nurses developed an intensive education program that helps frontline nurses perform multiple steps in the KYMRIAH process, including the collection of T cells, chemotherapy conditioning, infusion, and recovery.
As the development of life-changing therapies accelerates, Boston Children’s nurses are ready, says Colleen Dansereau, MSN, RN, CPN, director of clinical operations for the hospital’s Gene Therapy Program, and director of clinical research nursing at Dana Farber/Boston Children’s Cancer and Blood Disorders Center. “Our clinicians have learned to think in new, creative ways to shift the model of how medicine is practiced,” she says. “We’re ahead of the game because we already have an innovative program in place.”
Related Posts :
Cancer care in transgender patients: Things to consider
Increasingly, transgender youth and adults are undergoing (or planning) gender-affirming surgery and taking masculinizing or feminizing hormones. If they have ...
Honoring our Black achievers
Each year, Boston Children’s Hospital honors exceptional Black achievers who have progressed in their careers and demonstrated a commitment ...
Matthew, the ‘wee marvel’: One of the first ALD gene therapy recipients
When the Elliott brothers are asked how many siblings they have, they always say, “four.” It’s a way of ...
After decades of evolution, gene therapy arrives
As early as the 1960s, scientists speculated that DNA sequences could be introduced into patients’ cells to cure genetic disorders. ...