Search Results for: cardiomyopathy
Kiersten finds new purpose after care for life-threatening cardiomyopathy
Being just three miles away from her cardiac care team at Boston Children’s makes all the difference in the world …Read More
Ava’s journey with arrhythmogenic cardiomyopathy
Claire Poole never thought a 10-year-old could have a heart condition. So when her daughter, Ava, slumped against the wall …Read More
Every heart has a story. See how we care for them all.
It’s easy to think of the heart as a common denominator — everyone has one — but no two hearts …Read More
Shoring up heart muscle’s mini ‘managers’ to treat heart failure
Our heart muscle is studded with tiny dyads, intricately designed structures that manage incoming electrical signals and calcium release to …Read More
Genetic sequencing may open doors for newborns with hypotonia
When a baby is born with low muscle tone (hypotonia), the future is hard to predict, and families have a …Read More
Getting to the heart of heart muscle function
Every heart muscle cell, or cardiomyocyte, is studded with tiny, intricate structures called dyads. The dyads are like orchestra conductors: …Read More
Coordinated care and research for genetic cardiovascular disorders
Genetic cardiovascular disease in children sometimes comes to light in a crisis — a sudden collapse, sudden breathing difficulty, a …Read More
Hydroxychloroquine and COVID-19: What we know so far
Despite the current hype, infectious disease experts and others are cautious about using chloroquine drugs in the current COVID-19 pandemic. …Read More
Gene therapy reverses heart failure in mouse model of Barth syndrome
Barth syndrome is a rare metabolic disease caused by mutation of a gene called tafazzin or TAZ. It can cause …Read More
When your child has CHD: Advice from parents for parents
“When you enter the world of congenital heart conditions (CHDs), everything can feel new, scary, complicated, and fast paced,” says …Read More