Search Results for: "Craniofacial Program"
No labels or limits with Apert syndrome: A letter to parents
Dear parents, If you’re reading this, your child might have been recently diagnosed with Apert syndrome and you don’t know …Read More
Decades in the making: JR’s journey with craniofacial care
Last fall, JR Foley posted on Facebook to thank members of the Craniofacial Program at Boston Children’s Hospital for seeing …Read More
Pieces at work: Luca’s experience with Apert syndrome
Luca Paolacci, 24, is pursuing his bachelor’s degree in mechanical engineering. It’s a serendipitous major given that it studies how …Read More
New year, new face, same spirit: Zoey’s journey with encephalocele and cleft lip care
Seven-year-old Zoey loves school, her friends, and everything unicorn. She’s outgoing and happy and has an eye for looking her …Read More
Sonny’s story: How an online Apert syndrome community set one family on a path to Boston
Sonny Daniel has had a busy summer. Between traveling, camp, and time with family and friends, this 4-year-old has constantly …Read More
Violet is blossoming five years after Tessier cleft surgery
In October 2014, Violet and her parents traveled from their home in rural Oregon to Boston Children’s Hospital for a …Read More
A rare diagnosis: Zoey’s new smile
After her surgery at Boston Children’s for a frontal encephalocele and cleft lip, Zoey, a tutu-lover from Mississippi, is home and thriving.