Families travel to Boston Children’s Hospital from around the corner and around the globe. This year, we highlighted three of these fantastic kids.
A few months after he was born, Priyanshu was diagnosed with double outlet right ventricle (DORV) with hypoplastic (small) ventricle, a rare congenital heart condition. After one surgery, multiple hospitals in India declined to further treat Priyanshu due to the severity of his condition. Read more about how his father’s determination brought Priyanshu to Boston Children’s Benderson Family Heart Center — and a lifesaving surgery.
When Laila arrived from Egypt, she had already been misdiagnosed nine times — but it was no wonder. After three months at Boston Children’s, her parents learned she has trichohepatoenteric syndrome. This extremely rare genetic condition can cause chronic diarrhea, liver disease, and other complications that can be life threatening if left untreated. Learn how Laila’s care team in the Congenital Enteropathy Program is helping her live her best life.
Metehan (United Kingdom)
When he was just 8 weeks old, Metehan was diagnosed with type 1 spinal muscular atrophy (SMA-1), a degenerative genetic disorder that leads to loss of muscle function over time. After learning that he could receive a rare gene therapy treatment at Boston Children’s, his parents traveled for care in the hospital’s Spinal Muscular Atrophy Program. Read more about how our Global Services team helped make the process as smooth as possible.
Learn more about Global Services at Boston Children’s.
Related Posts :
Global services: Coordinating care for international families
In most years, more than 2,500 families living outside of the United States seek care at Boston Children’s Hospital. To ...
Saving Laila: Family travels from Egypt for answers about rare genetic condition
When Aya Hendawy got off the plane that had brought her from Egypt to Boston, she didn’t linger in ...
To #SavePriyanshu: A father’s reach across the world to save his son
Any parent can relate: to the ends of the earth is just the beginning of how far you will go ...
A rebirth in Boston: Gene therapy turns 10
Lea la versión en español. Dec. 17 marks a decade since Agustín Cáceres was “renacido” — reborn. That’...